To Err Is Healthcare
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Healthcare Story Collection

Poor Informed Consent Process

2/8/2019

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Our 1 year old son needed to have some diagnostic tests to determine the cause of his non-typical asthma symptoms. These included an endoscopy to look at his upper airway for obstructions, and imaging of his brain and chest. The imaging was to be done while he was still under anesthesia and originally the physician requested a CT scan. At this point our son had several CT scans already and we were concerned about another one. Upon doing research we realized that an MRI is another option with much less radiation exposure. We brought this to the attention our sons physician and he told us that he originally chose CT scan over MRI because it's faster and will require our son to be under anesthesia, which has risks of its own, for less time. We were upset because the physician did not give us the option to choose what we felt was best for our son (being under anesthesia for longer with less radiation, or, more radiation exposure but less time spent under anesthesia) and instead made the choice for us with his original CT scan order. If it wasn't for our own gut feeling and time spent doing research, we would not have been active and informed participants in our son's care.
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3-Year-Old Without Insurance

9/3/2018

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​My 3 year old daughter is ineligible to be added to my Marketplace health plan because they said if she qualifies for Medicaid she must get it from there. She however, has not had insurance for over a year because Medicaid is currently behind processing applications and my current health plan refuses to add her. I am literally requesting to throw money to my insurance plan to pay for her and they still refuse to add her. What are children suppose to do in the mean time? This is unacceptable.
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Doctors On  Autopilot

1/23/2017

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​Took my daughter for a physical at 18 years old. We didn't need it for school anymore but decided to go anyways because it was free and good practice as everyone says. It was a complete waste of my time from my perspective. She was first already 40 minutes late to the appointment. I was getting kind of aggravated for having to wait after all I did have an appointment. Since she was behind she rushed through everything. She asked questions such as what's your diet like and how often do you exercise. However,  they were just screeners and didn't add have a response at all to any of my answers. 10 minutes into the appointment she gets a knock on the door and leaves for 15 minutes. I never had a doctor ever leave for that long during the appointment. She came back in and apologized and rushed through the rest. I don't know how she could have caught anything in my daughter's throat or in her ears with how fast she went through the physical exam. Totally no attention to detail or thoroughness. Straight up autopilot.
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She Must Wait

10/26/2016

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​I'm on Florida Medicaid and just had a baby. After giving birth, Medicaid gave my daughter a United Healthcare Medicaid plan by default because that is what I have, even though I specifically asked them to, and filled out the paper for, to add her to StayWell because her current pediatrician that I like doesn't take United. Medicaid told me that I cannot simply just change her to Wellcare immediately, but instead I must wait a month. My newborn daughter must see the doctor sooner for her first after coming home visit because she had jaundice as slow weight gain in the hospital. Unfortunately, I have to wait a month till her WellCare insurance kicks in unless I find a new pediatrician temporarily, or not take my daughter to her 1 week followup doctor appointment as a newborn. When I call Medicaid to insist this is ludicrous, they agree with me but say it's a system problem due to the way their process is set up and no manager can fix it. She must wait 30 days." 
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